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  2. Sesame Street Season 49
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Disability Corner

Discussion in 'Friends and Family' started by Boober_Gorg, Mar 2, 2004.

  1. Boober_Gorg

    Boober_Gorg Well-Known Member

    I've noticed that there are quite a few members of this forum who have disabilities. Thus I think there should be a thread where members can talk about their disabilities, mental or physical, without fear of ridicule. In this thread you can talk about the advantages and disadvantages about your condition, ask for advice from others if you feel inclined, or, whether or not you're disabled, even give advice to those who ask. Non-disabled members are also welcome to talk about any disabled people they work with. By doing all that, maybe we can get to know each other better.

    First off, both me and ssetta have Asperger's Syndrome. It's a form of autism which affects social skills, which creates a burden on one's childhood. It's very hard for someone with Asperger's to adapt to an environment, even if they've been there for a long time. But with me, I've made a good name for myself around the college I attend. My high school years were 90% pure torture, so you can imagine what a relief it is to make a fresh new start. I talk as much as I can with other people, in or out of my classes. Sometimes I'm a bit TOO self-conscious, but then again, so are a lot of people. Having been tortured and teased throughout high school, I know by now what makes a good impression and what makes a bad one (this especially applies towards this forum - I know what kind of posts give others a bad impression of you). But the more people I get to know, the bigger my confidence becomes. Since high school I've been yearning for a close relationship with a woman, but I tried all the wrong things, and thus was lectured sternly on how to behave around females. After awhile, I just stopped trying and started acting like a total eunich around them (talking about anything but romance) ... and astonishingly, it got pretty good results. Right now I'm dating a wonderful woman named Ronna, whom I met in a class last quarter and we've been dating since November. My relationship with her is the closest I've ever come to having true love. I'm doing things with her (and her younger sister Mindy, who also likes me) that I used to dream of doing with girls in high school: having nice, meaningful conversations; going to movies; dining out; and just plain exchanging happiness in general. Mindy also informs me about any faux pas I might be curious about ... now that's the kind of help I wish I had in high school.

    As advantaged as this makes me sound, I must confess that I still feel a little disadvantaged. For example, at times I can get competitive. Thanks to my high school years, I often don't feel very attractive ('cause I'm not blonde or blue-eyed), Thus, I tend to rely on others to cheer me up (mostly my mom or my dad, and sometimes even my sister), because when such thoughts fill my head, it becomes harder and harder to make myself feel happy. Then again, you might say it's because I dig my own social grave since I decide to be by myself more often than be with people, because frequently, I'm extremely at peace by myself. However, I do get lonely, and I yearn for the company of others, but I'm slowly taking steps to expand my social network. It's not as easy for me as it is for everyone else (or so I've led myself to believe). Still, as long as I keep my head filled with happy thoughts, like knowing that Ronna and Mindy both find me attractive, I feel complete. For me, depression is a feeling that comes and goes like life itself.

    Just like ssetta thinks it's not fair that Hilary Duff is given more attention than classic Sesame Street, I think it's not fair that more attention is paid to the field of acting than that of animation (the industry in which I plan to make a name for myself). Then again, they are two entirely different art forms, and each one is special in its own way. As long as I keep that in mind, then I'm all right.
     
  2. beaker

    beaker Well-Known Member

    Good post man...it sounds like youve come along way. I always love hearing people really progress in all aspects.

    I myself had OCD for the longest time(more organizing/anxiety for me...I remember when I was 3 I had to have all my sesame, japanese robots and star wars toys all lined up just so...never had the hand washing thing tho)
    and Ive had a milder form of diabetes since 1998(around the time I joined Muppet Central...hmm, coincidence? sugary candy muppet goodness!)
    That and Im also insane...ok, not really...people just think that when they see my comics. Anyways, I think its the challenges in life that end up making up better or more creative people sometimes.
     
  3. dmx10101

    dmx10101 Well-Known Member

    I used to have seizures when I was younger. I got them when I was very, very young not sure exact age, but I was able to rid them when I was 10 thanks to medicines and God. So, I have be seizure free for over 8 years.
     
  4. Klonoa

    Klonoa Well-Known Member

    I have been blind in my left eye since birth.

    It doesn't reallly affect too much, though. I do not have very good depth perception or periphrial vision. I have trouble doing certain things like catching fast moving objects like baseballs or riding a bicycle (my balance is kind of thrown off). Since I am technically legally blind I cannot drive a car either. But that's about all my disability keeps me from doing. You would never be able to tell just by looking at me that I am blind in my left eye.

    --Klonoa
     
  5. Whatever

    Whatever Well-Known Member

    I was born with a high frequency hearing loss. They did not diagnose thie until I was entering first grade, although my mom was certain that something was wrong because I talked odd. I was in speech therapy kindergarten through eighth grade. I actually enjoyed that, I had the same therapist 3rd through 8th grade and she became sort of a second mother to me. I cannot hear or understand whispering. I cannot hear s, sh, s blends, ch, and l most/ some of the time, and therefore I often say them wrong. My mom worries that my speech patterns may interfere with getting a job later on. I hate hate hate it when I cannot understand what is said to me. Usually if I cannot hear, I lose control and burst out crying. I avoid loud music to avoid further damage to my ears. I miss out on lots of parties due to this. I prefer watching TV or movies with closed captions. My family has become accustomed to watching with closed captions too and have trouble watching without them now, though they have normal hearing. I finally got hearing aids two years ago. Although they were always my dream, I am not sure how much they really help me. I spent last year in Germany, and it took me longer to pick up German than my friends, which was so frustrating. I spent a week in the hospital in Germany getting infusions, because my ears were ringing nonstop. The doctors said I have tinitus. That was an extremely difficult week, probably the worst in my life. I had problems with a Spanish professor this semester because I could not understand his accent. It's a really hard road, but I know I have done so much in spite of it. I am attending college on a full scholarship and with a 3.8 GPA and I am now fluent in German.
     
  6. Klonoa

    Klonoa Well-Known Member

    Oh yeah, one thing I forgot. I can't see any of those 3-D illusion things like Magic Eye or 3-D movies. I did see the MuppetVision 3-D thing at Disney World but I couldn't see any of the 3-D effects. You need both eyes for those.

    --Klonoa
     
  7. jediX

    jediX Well-Known Member

    That's because magic eye is actually a composite of two different views of the object, which, when procesed by both eyes, merges into one. Alas, the worthless trivia you pick up in psychology. :)

    As for me, I have severe asthma and absolutely terrible vision. Without glasses or contacts I can only see about 6 inches in front of me clearly. And as for the asthma, I can only run for short perious of time (under 30 seconds, typically) or else my throat will begin to close up and begin to fill with fluid -- this lasts up to 6 hours after the run, as well. I was able to manage doing marching band for four years in high school, which wasn't bad. Although the only 'physical' activities I can do without causing a really bad attack are weight training and swimming/snorkeling. But, I get by. At least it got me out of physical education requirements back in hs. ;)
     
  8. Klonoa

    Klonoa Well-Known Member

    Hey I was in marching band in high school as well. I crashed into people a lot. After a while everyone learned to stay out of my way! :)

    --Klonoa
     
  9. jediX

    jediX Well-Known Member

    Hehe, yea, although it's more fun to crash down judges, though ;)

    Anywho, just spoke w/ my psych teacher and 3d movies work slightly different than magic eye. They divide the video up with polarization, which requires both eyes to process the 3d aspect.
     
  10. anathema

    anathema Well-Known Member

    Yeah, that's right. I can't see them either - my right eye's optic nerve never developed properly, so all I get from that eye is a blurred image. For example, I'm typing this sitting about 12 inches away from my laptop's screen, and with my right eye I can't even read what I'm writing! And a side-effect of this is that I have little-to-no 3D vision.

    I did the Universal Studios tour last autumn, and despite my misgivings I figured I'd spent the money so I might as well go to the 3D attractions. As expected, all I actually saw was a slightly out-of-focus 2D double-image...except for when the 3D image stopped moving for a few seconds - just long enough for my brain to process the data and construct something that made sense to me :)
     
  11. Beebers

    Beebers Well-Known Member

    You are all very brave. The issues in my family, and with myself, have not been birth issues but accidents and ilnesses. I have a sister who, many years ago in an accident, was TBI (traumatic brain injury). She was 16, a brilliant artist, and survived but not to the life she'd known. She has no short-term memory at all. You will talk to her and have the same conversation 5 minutes later. From that day she always had her pictures in her head, but never again could she put them to paper or canvas, that brain-action which allows you to convey your pictures from your mind to your hand is gone forever. She has been epileptic ever since. And many other issues.

    I got myself a traumatic bunch of brain/bodily injuries one day, 3 1/2 years ago. I had no health insurance at that time and did all my own invented rehab. I had to teach myself how to do art again, something which had always come naturally to me, and I'm an entirely different artist now. To look at my art before and after is to look at the art of two different people in style and content. It took months to recover it, and I had paralysis in my arms and hands as well so the paintbrush would just drop out of my hands a hundred times a day. I started squeezing tubes of toothpaste to make my hands work. No longer would they just work, I had to tell them to. Sometimes I still have to do that, but not too often. I worked my way up to unopened soup cans, and after several months when I could do five-pound bags of flour I knew I was getting somewhere. I didn't speak or think properly for quite some time. (Though some might say I still don't and never did lol.

    It was all kitchen-item therapy. There are leftovers, sometimes the paralysis which I can kill with mind-over- matter strategy, and I'm 80% deaf in my right ear now as that was detroyed. My jaw is no longer aligned so I'm always biting the inside of my mouth, OW. And my balance is shot. However, I'm as lucky as I can be and have no complaints, having been briefly expired in zee ambulance. So life is good.

    Just keep on keepin' on, all you brave souls, 'cause it's worth it.

    :cool: :cool: :cool:
     
  12. ssetta

    ssetta Well-Known Member

    Well, see, Asperger's and autism are different kinds of disabilities. Only in a different way. But Boober's right, that is why I sometimes have trouble with life.
     
  13. ohdarling

    ohdarling Active Member

    i really like this thread. i think that its nice to know i'm not completly alone out there.

    i was born with mild cerebral palsey on my right side. the doctors said i wouldnt walk but i did. haha on them. in fact it really doesnt have that much affect on me, sometimes i'll get nervous and my hand will tense up o r shake. when im comfortable i have no probs. but because of it my left side is stronger. anyways, kids have always been so mean to me. it isnt that noticeable at first but once they found out, it was what i was teased about. because kids always look for whatever will hurt you.

    anyways, because of people always saying i cant do things, i prove it. telling me i can't do something is a sure fire way of getting me to do it.


    i also have ADD but that I was never teased for. it definetly caused probs though. meh! ;)
     
  14. Whatever

    Whatever Well-Known Member

    Boy can I sympathize. Why do you think a shy, near-deaf 17 year old suddenly decided to spend a year in Germany? Kidding, sort of. I went for other reasons too. But I was definately proving something to myself and to everyone who thought I couldn't do it.
     
  15. Aaron

    Aaron Well-Known Member

    i have cp too
     
  16. ohdarling

    ohdarling Active Member


    yeah it feels good though. Because you knew you could do it.
    And that was what counted.


    Aaron where does yours effect you? sorry if im nosey. im just curious..:) one thing i found was that everyone i knew that had cp seemed to be really smart. although i wouldnt consider myself a genious. and i had to deal with teachers treating me like i had a very low IQ . i had a pe teacher that talked to me like i couldn't understand what they were saying. GRrrrr. so silly!


    :p
     
  17. sarah_yzma

    sarah_yzma Well-Known Member

    I was blessed in the health dept, except for one spot.....uncontrollable bladder.....I'm the absolute WORST person to take a car trip with! (and I'm going on a ski trip with my youth group in a week, and as much as I tell them, they don't believe me) It's not a horrible problem, it's just irritating. When I was at Walt Disneyworld, I went to the bathroom in EVERY country in Epcot. (if you want to know, Morocco has the best one) To prevent my problem, I just can't have anything to drink when I'm not home (especially at school) and before flying, I can't have anything for hours and hours and hours before.

    All your stories show amazing strength...ROCK ON!
     
  18. Super Scooter

    Super Scooter Well-Known Member

    Well, my problems seem so unimportant.

    But, if you really want to hear...

    About 3 years ago, I had a cist removed from my neck, near my thyroid. After that, and after a year of trying to lose weight, I began to experience rapid weight gain. So, about 6 months ago, I went to have it checked out and was diagnosed with hypothyroidism. It effects the metabolism, and a side effect of it causes a type of depression. I have medication for it which helps stop the rapid weight gain, but not the depression. Of course, it's one of those medications where you "cannot take with any other medications," so the whole depression thing's kinda hopeless.

    That's that!
     
  19. Super Scooter

    Super Scooter Well-Known Member

    Heh. I remember you telling me that once. That must be awful.
     
  20. Aaron

    Aaron Well-Known Member

    im guessing the right side
     


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